I was slow to jump on the Ice Bucket Challenge bandwagon. In case you’re living in a cave, it’s when people dump ice and water on their heads to raise awareness AND money for ALS, then challenge others to do the same. I originally thought… ‘what is this actually doing to HELP the cause?’ NOW I get it, I know why it works: 1) it’s fun, 2) people like to watch other people make fools of themselves, 3) nobody likes to back down from a challenge, 4) most people don’t mind giving to a good cause… and 5) THIS is a good cause.
I’m familiar with ALS, a few years back, the BF wrote his thesis on the search for a cure. I googled it and it hurt my heart to see people afflicted with this horrible disease. I know there are plenty of terrible diseases out there, but most offer some hope: drugs, chemo, radiation, surgery. ALS is fatal, 100% of the time. There is no cure, life expectancy is 2 – 5 years. The BF works in the pharmaceutical industry, his company had an ALS drug fail in a late-stage trial, it was depressing. It would have been the first new drug to treat ALS in 15 years. I can’t imagine how many people pinned their hopes on that drug.
Which brings me to back to: The Ice Bucket Challenge. After poo-pooing it for nearly a week, I got called out. I was all set to ignore the challenge and write a check, but I said, “screw it”. I invited a friend over, she brought ice and wine, I provided snacks, a bucket and frigid water. We stressed about what we were going to say, we did a few takes (which made an AMAZING blooper reel). It was fun, we had SO many laughs, we’re STILL laughing about it. Then I researched reputable ALS charities and donated to: ALS TDI is a nonprofit biotech company dedicated to developing treatment; and Compassionate Care ALS supports people living with ALS. Then I googled something completely unrelated to ALS and miraculously came across this blog, written by a man living with ALS. It’s touching and sad and amazingly well written.
So there you have it. If you haven’t been challenged, I challenge you. Keep it going. Have fun. Donate a few dollars if you can. Then thank your lucky stars you have the ability to lift a bucket.